Your Visit.
Your Voice.

Being diagnosed and living with ITP can be challenging. While your doctor is your most important resource for managing your condition and treatment, you may leave your doctor’s office feeling like you didn’t get what you needed or that you didn’t tell your doctor what you wanted to say.

Your Visit. Your Voice. is a program to help improve your ability to have more meaningful conversations with your doctor. This includes identifying your communication challenges and demonstrating simple and practical communication skills, called LEAPS, that you can use during your next visit.

Watch the Introduction to LEAPS video to learn more about communication skills that may be helpful to you.


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Let's Get Started

Are you a:

Patient

Care Partner

Are you a care partner? Select the Care Partner button to hear stories from 2 care partners: One caring for a patient recently diagnosed with ITP and the other caring for a patient who has been living with ITP for 3 months.

Choose a Backstory

Select the patient whose ITP story you relate with the most
to view them demonstrating the LEAPS communication skills.

Patient Lily image

Patient Backstory: Lily

Lily was just diagnosed with ITP. Listen to Lily’s story.

Patient Olsen image

Patient Backstory: Olsen

Olsen has been living with ITP for 3 months. Listen to Olsen’s story.

Your Visit. Your Voice.
Skills Summary Sheet

Provides an overview of
communication skills that you
can use during your next visit.

View Skills Videos
Back
Choose Another Backstory

Answer Questions and
View Your Skills Videos

Take a moment to think about a medical visit that did not go as well as you wanted. Answer the following questions about those communication challenges and view the LEAPS communication skills–building videos that you can use during your next visit.

Time for Activity: 5 minutes.

1 The doctor did not explain my medical problem in a way I understood.

Agree
Neutral
Disagree

2 The doctor used confusing medical terms.

Agree
Neutral
Disagree

3 I forgot or did not feel comfortable asking the doctor questions.

Agree
Neutral
Disagree

4 I could not remember all the things I was supposed to do after leaving my medical visit.

Agree
Neutral
Disagree
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Choose Another Backstory
Choose Another Backstory

5 The doctor did not have a good understanding of me as a person.

Agree
Neutral
Disagree

6 The doctor was not aware of what I know or think about my medical problem and symptoms.

Agree
Neutral
Disagree

7 The doctor misunderstood something I said.

Agree
Neutral
Disagree
Choose Another Backstory
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Choose Another Backstory

8 The doctor did not consider difficulties I had following treatment recommendations.

Agree
Neutral
Disagree

9 The doctor did not focus on helping me identify workable ways to make changes in my everyday habits.

Agree
Neutral
Disagree

10 It was not easy to ask for details or express doubts about the tests or treatments the doctor recommended.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

11 The doctor did not address the problems I most wanted to discuss.

Agree
Neutral
Disagree

12 The doctor did not discuss treatment risks, benefits, or alternatives with me.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

13 The doctor did not effectively address my fears or concerns.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

Putting What You Learned Into Practice

Practice Worksheet

Now that you have watched your communication skills–building videos, use this worksheet to plan how you will use each skill during your next office visit.

Click Here For Your Practice Worksheet

Putting What
You Learned
Into Practice

Now that you have watched your communication skills–building videos, you can print this worksheet to write in the spaces below how you will use each skill during your next visit.

close
When the doctor does not explain your medical problem in a way you understand…

Check your understanding by putting what the doctor said in your own words

When the doctor uses confusing medical terms…

Ask for a clear explanation

When you forget or do not feel comfortable asking the doctor questions…

Prepare questions before the visit and be sure to ask them

When you could not remember all the things you were supposed to do after leaving the medical visit…

Take notes and summarize what you've heard

When the doctor does not have a good understanding of you as a person…

Tell the doctor about your values and preferences for care

When the doctor is not aware of what you know or think about your medical problem and symptoms…

Share your perspective on your health problems and concerns

When the doctor misunderstood something you said…

Check that the doctor clearly understood the key things that you said

When the doctor does not consider difficulties you had following treatment recommendations….

Identify and talk about treatment and self-care challenges

When the doctor does not focus on helping you identify workable ways to make changes in your everyday habits…

Brainstorm and problem-solve with the doctor to come up with a plan

When it is not easy to ask for details or express doubts about the tests or treatments the doctor recommends…

Ask follow-up questions about tests, medications, and lifestyle recommendations

When the doctor does not address the problems you most wanted to discuss…

Set an agenda for the visit and decide what is most important for you to discuss

When the doctor does not discuss treatment risks, benefits, or alternatives with you…

Actively participate in treatment decisions

When the doctor does not effectively address your fears and concerns…

Talk openly with the doctor about any concerns or worries

Choose Another Backstory
View Skills Videos
Back
Choose Another Backstory

Answer Questions and
View Your Skills Videos

Take a moment to think about a medical visit that did not go as well as you wanted. Answer the following questions about those communication challenges and view the LEAPS communication skills–building videos that you can use during your next visit.

Time for Activity: 5 minutes.

1 The doctor did not explain my medical problem in a way I understood.

Agree
Neutral
Disagree

2 The doctor used confusing medical terms.

Agree
Neutral
Disagree

3 I forgot or did not feel comfortable asking the doctor questions.

Agree
Neutral
Disagree

4 I could not remember all the things I was supposed to do after leaving my medical visit.

Agree
Neutral
Disagree
View All Videos
Choose Another Backstory
Choose Another Backstory

5 The doctor did not have a good understanding of me as a person.

Agree
Neutral
Disagree

6 The doctor was not aware of what I know or think about my medical problem and symptoms.

Agree
Neutral
Disagree

7 The doctor misunderstood something I said.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

8 The doctor did not consider difficulties I had following treatment recommendations.

Agree
Neutral
Disagree

9 The doctor did not focus on helping me identify workable ways to make changes in my everyday habits.

Agree
Neutral
Disagree

10 It was not easy to ask for details or express doubts about the tests or treatments the doctor recommended.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

11 The doctor did not address the problems I most wanted to discuss.

Agree
Neutral
Disagree

12 The doctor did not discuss treatment risks, benefits, or alternatives with me.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

13 The doctor did not effectively address my fears or concerns.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

Putting What You Learned Into Practice

Practice Worksheet

Now that you have watched your communication skills–building videos, use this worksheet to plan how you will use each skill during your next office visit.

Click Here For Your Practice Worksheet

Putting What
You Learned
Into Practice

Now that you have watched your communication skills–building videos, you can print this worksheet to write in the spaces below how you will use each skill during your next visit.

close
When the doctor does not explain your medical problem in a way you understand…

Check your understanding by putting what the doctor said in your own words

When the doctor uses confusing medical terms…

Ask for a clear explanation

When you forget or do not feel comfortable asking the doctor questions…

Prepare questions before the visit and be sure to ask them

When you could not remember all the things you were supposed to do after leaving the medical visit…

Take notes and summarize what you've heard

When the doctor does not have a good understanding of you as a person…

Tell the doctor about your values and preferences for care

When the doctor is not aware of what you know or think about your medical problem and symptoms…

Share your perspective on your health problems and concerns

When the doctor misunderstood something you said…

Check that the doctor clearly understood the key things that you said

When the doctor does not consider difficulties you had following treatment recommendations….

Identify and talk about treatment and self-care challenges

When the doctor does not focus on helping you identify workable ways to make changes in your everyday habits…

Brainstorm and problem-solve with the doctor to come up with a plan

When it is not easy to ask for details or express doubts about the tests or treatments the doctor recommends…

Ask follow-up questions about tests, medications, and lifestyle recommendations

When the doctor does not address the problems you most wanted to discuss…

Set an agenda for the visit and decide what is most important for you to discuss

When the doctor does not discuss treatment risks, benefits, or alternatives with you…

Actively participate in treatment decisions

When the doctor does not effectively address your fears and concerns…

Talk openly with the doctor about any concerns or worries

When the doctor does not explain your medical problem in a way you understand…

Check your understanding by putting what the doctor said in your own words

When the doctor uses confusing medical terms…

Ask for a clear explanation

When you forget or do not feel comfortable asking the doctor questions…

Prepare questions before the visit and be sure to ask them

When you could not remember all the things you were supposed to do after leaving the medical visit…

Take notes and summarize what you've heard

When the doctor does not have a good understanding of you as a person…

Tell the doctor about your values and preferences for care

When the doctor is not aware of what you know or think about your medical problem and symptoms…

Share your perspective on your health problems and concerns

When the doctor misunderstood something you said…

Check that the doctor clearly understood the key things that you said

When the doctor does not consider difficulties you had following treatment recommendations….

Identify and talk about treatment and self-care challenges

When the doctor does not focus on helping you identify workable ways to make changes in your everyday habits…

Brainstorm and problem-solve with the doctor to come up with a plan

When it is not easy to ask for details or express doubts about the tests or treatments the doctor recommends…

Ask follow-up questions about tests, medications, and lifestyle recommendations

When the doctor does not address the problems you most wanted to discuss…

Set an agenda for the visit and decide what is most important for you to discuss

When the doctor does not discuss treatment risks, benefits, or alternatives with you…

Actively participate in treatment decisions

When the doctor does not effectively address your fears and concerns…

Talk openly with the doctor about any concerns or worries

Choose Another Backstory
View Skills Videos
Back
Choose Another Backstory

Answer Questions and
View Your Skills Videos

Take a moment to think about a medical visit that did not go as well as you wanted. Answer the following questions about those communication challenges and view the LEAPS communication skills–building videos that you can use during your next visit.

Time for Activity: 5 minutes.

1 The doctor did not explain the patient’s medical problem in a way I understood.

Agree
Neutral
Disagree

2 The doctor used confusing medical terms.

Agree
Neutral
Disagree

3 The patient forgot or did not feel comfortable asking the doctor questions.

Agree
Neutral
Disagree

4 I could not remember all the things the patient was supposed to do after leaving the medical visit.

Agree
Neutral
Disagree
View All Videos
Choose Another Backstory
Choose Another Backstory

5 The doctor did not have a good understanding of the patient as a person.

Agree
Neutral
Disagree

6 The doctor was not aware of what you know or think about the patient’s medical problem and symptoms.

Agree
Neutral
Disagree

7 The doctor misunderstood something the patient said.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

8 The doctor did not consider difficulties the patient had following treatment recommendations.

Agree
Neutral
Disagree

9 The doctor did not focus on helping the patient identify workable ways to make changes in their everyday habits.

Agree
Neutral
Disagree

10 It was not easy to ask for details or express doubts about the tests or treatments that the doctor recommended.

Agree
Neutral
Disagree
Choose Another Backstory
View All Videos
Choose Another Backstory

11 The doctor did not address the problems the patient most wanted to discuss.

Agree
Neutral
Disagree

12 The doctor did not discuss treatment risks, benefits, or alternatives with the patient.

Agree
Neutral