What is the
I-WISh Survey?
See How ITP Affects
People Throughout
the World

What is the
I-WISh
Survey?

Although immune thrombocytopenia (ITP) is a rare condition, it affects hundreds of thousands of people throughout the world—often in ways that are not fully understood or appreciated. To help shine a light on the challenges and goals of people living with ITP, Novartis created the I-WISh Survey, a large-scale study:


Sunset people
Patient portrayal.
An icon of people with ITP who participated in the I-WISh survey

Completed by 1507
people with ITP

An icon of doctors who participated in the ITP I-WISh survey

472 doctors
who treat ITP

An icon of people with ITP around the world who participated in the I-WISh
survey

Across 13 countries



You should know that, when it comes to how ITP affects you and your life, you are not alone. There are people with similar experiences all over the world. You may find this information useful when talking to your doctor about the treatment options that can best improve your condition and your daily life.



See how ITP
affects people
throughout
the world

The results below represent all of the people who completed the I-WISh survey globally. However, you can also see the results from each country that participated. Select your country to learn about the impact of ITP near you.


Select Country
  • Canada
  • China
  • Colombia
  • Egypt
  • France
  • Germany
  • India
  • Italy
  • Japan
  • Spain
  • Turkey
  • United Kingdom
  • United States
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Global: I-WISh Results

Learn what people around the world and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue and petechiae, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
people icon What people with ITP said…
  • 5 of 10 experience fatigue
  • 3 of 10 experience anxiety about their platelet count being unstable
  • 3 of 10 experience petechiae (tiny red/purple dots on the skin)
What doctors said…
  • 8 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 7 of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
  • 7 of 10 said their patients experience nosebleeds and gum bleeding
The symptoms people with ITP most want to go away
  • 5 of 10 said fatigue
  • 2 of 10 said anxiety about their platelet count being unstable
  • 2 of 10 said bruising for no known reason
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 4 of 10 said their energy levels
  • 3 of 10 said their ability to exercise
  • 3 of 10 said their work life or their studies
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry that my condition will get worse
  • #3: I worry about my disease
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.
The most common treatment goals
What people with ITP said their goals are…
  • 6 of 10 said healthy blood counts
  • 4 of 10 said preventing their ITP from becoming worse
  • 4 of 10 said increasing their energy levels
What doctors said their goals are…
  • 7 of 10 said reducing spontaneous bleeds
  • 6 of 10 said a better quality of life
  • 5 of 10 said healthy blood counts
Preferences about how treatment is taken
What people with ITP said…
  • 8 of 10 said they prefer oral once-daily pill
What doctors said…
  • 8 of 10 said they prefer oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 86
  • Reduce bleeding: 87
Satisfaction with treatment
  • People taking TPO-RAs were twice as likely to recommend this treatment to another person with ITP, compared with people taking a monoclonal antibody or corticosteroids*
  • Approximately 15% to 20% more people experience fatigue as a side effect of treatment† with corticosteroids or a monoclonal antibody, compared to treatment with TPO-RAs
The most common effects of splenectomy
What people who received a splenectomy said…
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • 5 of 10 required regular immunizations
  • 3 of 10 experienced more infections
  • 2 of 10 experienced none of these consequences

*These results are based on the number of patients who said they strongly agree with the statement that they would recommend the treatment to another person with ITP.

Among patients reporting a high or very high symptom burden.

A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Canada: I-WISh Survey Results

Learn what people from Canada and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue and petechiae, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 7 of 10 experience fatigue
  • 5 of 10 experience anxiety about their platelet count being unstable
  • 5 of 10 experience petechiae (tiny red/purple dots on the skin)
What doctors said…
  • 9 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 8 of 10 said their patients experience nosebleeds
  • 7 of 10 said their patients experience gum bleeding
The symptoms people with ITP most want to go away
  • 7 of 10 said fatigue
  • 3 of 10 said anxiety about their platelet count being unstable
  • 2 of 10 said bruising for no known reason
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 6 of 10 said their energy levels
  • 4 of 10 said their ability to exercise
  • 4 of 10 said their work life or their studies
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my condition will get worse
  • #2: I worry that my platelet count fluctuates for no apparent reason
  • #3: I worry about my disease
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.
The most common treatment goals
What people with ITP said their goals are…
  • 7 of 10 said healthy blood counts
  • 5 of 10 said increasing their energy levels
  • 4 of 10 said preventing their ITP from becoming worse
What doctors said their goals are…
  • 7 of 10 said reducing spontaneous bleeds
  • 7 of 10 said a better quality of life
  • 6 of 10 said healthy blood counts
Preferences about how treatment is taken
What people with ITP said…
  • 8 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 10 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 90
  • Reduce bleeding: 89
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

China: I-WISh Survey Results

Learn what people from China and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue and bruising, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 4 of 10 experience fatigue
  • 4 of 10 experience bruising for no known reason
  • 3 of 10 experience anxiety about their platelet count being unstable
What doctors said…
  • 8 of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
  • 8 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 8 of 10 said their patients experience gum bleeding
The symptoms people with ITP most want to go away
  • 3 of 10 said bruising for no known reason
  • 3 of 10 said fatigue
  • 3 of 10 said anxiety about their platelet count being unstable
  • 3 of 10 said petechiae (tiny red/purple dots on the skin)
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 4 of 10 said their energy levels
  • 4 of 10 said their ability to exercise
  • 4 of 10 said their work life or their studies
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry about my disease
  • #3: I worry about dying
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preference for a treatment with minimal side effects.
The most common treatment goals
What people with ITP said their goals are…
  • 6 of 10 said reducing my spontaneous bruising/bleeding
  • 5 of 10 said healthy blood counts
  • 5 of 10 said improving my quality of life
What doctors said their goals are…
  • 8 of 10 said reducing spontaneous bleeds
  • 6 of 10 said a better quality of life
  • 5 of 10 said healthy blood counts
Preferences about how treatment is taken
What people with ITP said…
  • 8 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 5 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 87
  • Reduce bleeding: 88
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Colombia: I-WISh Survey Results

Learn what people from Colombia and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as bruising and petechiae, but their doctors may not be aware of their fatigue or the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 5 of 10 experience fatigue
  • 3 of 10 experience bruising for no known reason
  • 3 of 10 experience petechiae (tiny red/purple dots on the skin)
What doctors said…
  • 10 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 8 of 10 said their patients experience nosebleeds
  • 8 of 10 said their patients experience gum bleeding
The symptoms people with ITP most want to go away
  • 5 of 10 said fatigue
  • 3 of 10 said anxiety about their platelet count being unstable
  • 3 of 10 said petechiae (tiny red/purple dots on the skin)
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 4 of 10 said their energy levels
  • 4 of 10 said their work life or their studies
  • 4 of 10 said their ability to exercise
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry about dying
  • #3: I worry that my condition will get worse
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preference for a treatment with minimal side effects.
The most common treatment goals
What people with ITP said their goals are…
  • 6 of 10 said improving my quality of life
  • 5 of 10 said healthy blood counts
  • 4 of 10 said reducing my spontaneous bruising/bleeding
What doctors said their goals are…
  • 9 of 10 said healthy blood counts
  • 8 of 10 said a better quality of life
  • 7 of 10 said reducing spontaneous bleeds
Preferences about how treatment is taken
What people with ITP said…
  • 10 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 9 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 90
  • Reduce bleeding: 90
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Egypt: I-WISh Survey Results

Learn what people from Egypt and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue and dizziness, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 6 of 10 experience fatigue
  • 6 of 10 experience anxiety about their platelet count being unstable
  • 5 of 10 experience dizziness
What doctors said…
  • 9 of 10 said their patients experience gum bleeding
  • 7 of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
  • 6 of 10 said their patients experience fatigue
The symptoms people with ITP most want to go away
  • 4 of 10 said fatigue
  • 3 of 10 said heavy bleeding from the gums
  • 3 of 10 said dizziness
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to socialize or take on daily tasks. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 4 of 10 said their energy levels
  • 4 of 10 said their social life
  • 4 of 10 said their ability to support people
  • 4 of 10 said their ability to take on daily tasks
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry about having a stable and safe platelet count
  • #3: I am stressed about my ITP condition
  • #4: I often feel anxious/nervous about my platelet counts
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.
The most common treatment goals
What people with ITP said their goals are…
  • 7 of 10 said increasing their energy levels
  • 5 of 10 said reducing spontaneous bleeds/bruising
  • 5 of 10 said improving their quality of life
What doctors said their goals are…
  • 8 of 10 said reducing spontaneous bleeds
  • 7 of 10 said a better quality of life
  • 5 of 10 said slowing or delaying the progression of ITP
Preferences about how treatment is taken
What people with ITP said…
  • 8 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 7 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 73
  • Reduce bleeding: 92
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

France: I-WISh Survey Results

Learn what people from France and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 5 of 10 experience fatigue
  • 3 of 10 experience no symptoms
  • 3 of 10 experience anxiety about their platelet count being unstable
What doctors said…
  • 9 of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
  • 7 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 7 of 10 said their patients experience gum bleeding
The symptoms people with ITP most want to go away
  • 5 of 10 said fatigue
  • 2 of 10 said anxiety about their platelet count being unstable
  • 2 of 10 said heavy menstrual bleeding
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 3 of 10 said their energy levels
  • 3 of 10 said their work life or their studies
  • 3 of 10 said their ability to exercise
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry that my condition will get worse
  • #3: I worry about my disease
  • #4: I worry about dying
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preference for a treatment with minimal side effects.
The most common treatment goals
What people with ITP said their goals are…
  • 7 of 10 said healthy blood counts
  • 6 of 10 said preventing their ITP from becoming worse
  • 5 of 10 said improving their quality of life
What doctors said their goals are…
  • 8 of 10 said reducing spontaneous bleeds
  • 6 of 10 said a better quality of life
  • 4 of 10 said symptom improvement
Preferences about how treatment is taken
What people with ITP said…
  • 8 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 8 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 90
  • Reduce bleeding: 91
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Germany: I-WISh Survey Results

Learn what people from Germany and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as hematomas and fatigue, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 4 of 10 experience hematomas
  • 4 of 10 experience fatigue
  • 3 of 10 experience bruising for no known reason
What doctors said…
  • 9 of 10 said their patients experience nosebleeds
  • 7 of 10 said their patients experience hematomas
  • 6 of 10 said their patients experience prolonged bleeding from cuts
The symptoms people with ITP most want to go away
  • 3 of 10 said fatigue or hematomas
  • 2 of 10 said anxiety about their platelet count being unstable
  • 2 of 10 said prolonged bleeding from cuts
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or have sex. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 4 of 10 said their ability to exercise
  • 3 of 10 said their energy levels
  • 3 of 10 said their sex life
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my condition will get worse
  • #2: I worry that my platelet count fluctuates for no apparent reason
  • #3: I worry about my disease
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.
The most common treatment goals
What people with ITP said their goals are…
  • 6 of 10 said healthy blood counts
  • 5 of 10 said improving their quality of life
  • 4 of 10 said increasing their energy levels
What doctors said their goals are…
  • 8 of 10 said better quality of life
  • 6 of 10 said reducing spontaneous bleeds
  • 4 of 10 said healthy blood counts
Preferences about how treatment is taken
What people with ITP said…
  • 6 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 7 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 76
  • Reduce bleeding: 77
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

India: I-WISh Survey Results

Learn what people from India and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue and bleeding, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 5 of 10 experience fatigue
  • 4 of 10 experience heavy menstrual bleeding
  • 4 of 10 experience anxiety about their platelet count being unstable
What doctors said…
  • 9 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 9 of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
  • 9 of 10 said their patients experience gum bleeding
The symptoms people with ITP most want to go away
  • 4 of 10 said fatigue
  • 4 of 10 said heavy menstrual bleeding
  • 3 of 10 said anxiety about their platelet count being unstable
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to work or study. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 4 of 10 said their work life or their studies
  • 3 of 10 said their time off work or their education
  • 3 of 10 said their energy levels
The emotional impact of ITP: What people said they worry about most
  • #1: I often feel anxious/nervous about my platelet counts
  • #1: I worry about having a stable and safe platelet count
  • #2: I worry that my platelet count fluctuates for no apparent reason
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that prevents their ITP from becoming worse.
The most common treatment goals
What people with ITP said their goals are…
  • 7 of 10 said healthy blood counts
  • 5 of 10 said improving their quality of life
  • 5 of 10 said preventing their ITP from becoming worse
What doctors said their goals are…
  • 8 of 10 said reducing spontaneous bleeds
  • 7 of 10 said a better quality of life
  • 4 of 10 said symptom improvement
Preferences about how treatment is taken
What people with ITP said…
  • 8 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 8 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 83
  • Reduce bleeding: 76
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Italy: I-WISh Survey Results

Learn what people from Italy and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue and bruising, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 4 of 10 experience fatigue
  • 4 of 10 experience anxiety about their platelet count being unstable
  • 2 of 10 experience bruising for no known reason
What doctors said…
  • 9 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 9 of 10 said their patients experience hematomas
  • 9 of 10 said their patients experience nosebleeds
The symptoms people with ITP most want to go away
  • 4 of 10 said fatigue
  • 3 of 10 said anxiety about their platelet count being unstable
  • 2 of 10 said bruising for no known reason
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or pursue hobbies. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 5 of 10 said their ability to exercise
  • 4 of 10 said their energy levels
  • 3 of 10 said their hobbies
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry that my condition will get worse
  • #3: I feel helpless because of my ITP
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that prevents their ITP from becoming worse.
The most common treatment goals
What people with ITP said their goals are…
  • 6 of 10 said reducing spontaneous bleeds/bruising
  • 5 of 10 said healthy blood counts
  • 5 of 10 said preventing their ITP from becoming worse
What doctors said their goals are…
  • 8 of 10 said better quality of life
  • 7 of 10 said reducing spontaneous bleeds
  • 5 of 10 said symptom improvement
Preferences about how treatment is taken
What people with ITP said…
  • 9 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 8 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 88
  • Reduce bleeding: 88
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Japan: I-WISh Survey Results

Learn what people from Japan and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as petechiae, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 4 of 10 experience anxiety about their platelet count being unstable
  • 3 of 10 experience no symptoms
  • 3 of 10 experience petechiae (tiny red/purple dots on the skin)
What doctors said…
  • 9 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 9 of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
  • 7 of 10 said their patients experience nosebleeds
The symptoms people with ITP most want to go away
  • 4 of 10 said anxiety about their platelet count being unstable
  • 3 of 10 said petechiae (tiny red/purple dots on the skin)
  • 2 of 10 said bruising for no known reason
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to socialize, work, or study. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 2 of 10 said their ability to support people
  • 1 of 10 said their work life or their studies
  • 1 of 10 said their energy levels or their social life
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry that my condition will get worse
  • #3: I worry about having a stable and safe platelet count
  • #3: I often feel anxious/nervous about my platelet counts
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that prevents their ITP from becoming worse.
The most common treatment goals
What people with ITP said their goals are…
  • 6 of 10 said healthy blood counts
  • 6 of 10 said preventing their ITP from becoming worse
  • 4 of 10 said reducing my spontaneous bleeds/bruising
What doctors said their goals are…
  • 7 of 10 said a better quality of life
  • 6 of 10 said reducing spontaneous bleeds
  • 6 of 10 said healthy blood counts
Preferences about how treatment is taken
What people with ITP said…
  • 9 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 9 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 80
  • Reduce bleeding: 88
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Spain: I-WISh Survey Results

Learn what people from Spain and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue and petechiae, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 4 of 10 experience anxiety about their platelet count being unstable
  • 3 of 10 experience fatigue
  • 3 of 10 experience petechiae (tiny red/purple dots on the skin)
What doctors said…
  • 9 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 8 of 10 said their patients experience hematomas
  • 7 of 10 said their patients experience gum bleeding
The symptoms people with ITP most want to go away
  • 4 of 10 said anxiety about their platelet count being unstable
  • 3 of 10 said fatigue
  • 3 of 10 said bruising for no known reason or petechiae (tiny red/purple dots on the skin)
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their social or sex lives. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 3 of 10 said their energy levels
  • 2 of 10 said their social life
  • 2 of 10 said their sex life
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry that my condition will get worse
  • #3: I feel helpless because of my ITP
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that prevents their ITP from becoming worse.
The most common treatment goals
What people with ITP said their goals are…
  • 5 of 10 said reducing spontaneous bleeds/bruising
  • 5 of 10 said preventing their ITP from becoming worse
  • 5 of 10 said improving their quality of life
What doctors said their goals are…
  • 7 of 10 said a better quality of life
  • 7 of 10 said reducing spontaneous bleeds
  • 5 of 10 said symptom improvement
Preferences about how treatment is taken
What people with ITP said…
  • 9 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 10 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 77
  • Reduce bleeding: 81
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Turkey: I-WISh Survey Results

Learn what people from Turkey and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as petechiae and fatigue, but their doctors may not be aware of how fatigue and headaches also affect their lives.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 8 of 10 experience petechiae (tiny red/purple dots on the skin)
  • 5 of 10 experience fatigue
  • 2 of 10 experience more moderate-to-severe headaches or migraines
What doctors said…
  • 10 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 9 of 10 said their patients experience fatigue
  • 9 of 10 said their patients experience gum bleeding
The symptoms people with ITP most want to go away
  • 8 of 10 said petechiae (tiny red/purple dots on the skin)
  • 5 of 10 said fatigue
  • 2 of 10 said moderate-to-severe headaches or migraines
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their sex life to their ability to exercise or pursue hobbies. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 8 of 10 said their sex life
  • 7 of 10 said their ability to exercise
  • 6 of 10 said their hobbies
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my platelet count fluctuates for no apparent reason
  • #2: I worry about my disease
  • #3: I worry that my condition will get worse
  • #3: I am stressed about my ITP condition
  • #3: I worry about dying
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but doctors may not be aware of their patients’ preference for a treatment with minimal side effects that improves their quality of life.
The most common treatment goals
What people with ITP said their goals are…
  • 7 of 10 said healthy blood counts
  • 5 of 10 said improving their quality of life
  • 5 of 10 said reducing spontaneous bleeds/bruising
What doctors said their goals are…
  • 8 of 10 said reducing spontaneous bleeds
  • 8 of 10 said healthy blood counts
  • 5 of 10 said slowing or delaying the progression of ITP
Preferences about how treatment is taken
What people with ITP said…
  • 8 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 10 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 99
  • Reduce bleeding: 99
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

United Kingdom: I-WISh Survey Results

Learn what people from the United Kingdom and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as bruising and petechiae, but their doctors may not be aware of how fatigue and depression also affect their lives.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 6 of 10 experience fatigue
  • 3 of 10 experience bruising for no known reason
  • 3 of 10 experience petechiae (tiny red/purple dots on the skin)
What doctors said…
  • 8 of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
  • 8 of 10 said their patients experience nosebleeds
  • 7 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
The symptoms people with ITP most want to go away
  • 6 of 10 said fatigue
  • 2 of 10 said bruising for no known reason
  • 2 of 10 said depression
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or take on daily tasks. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 4 of 10 said their energy levels
  • 3 of 10 said their ability to exercise
  • 2 of 10 said their ability to take on daily tasks
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my condition will get worse
  • #2: I worry that my platelet count fluctuates for no apparent reason
  • #3: I worry about my disease
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.
The most common treatment goals
What people with ITP said their goals are…
  • 7 of 10 said healthy blood counts
  • 6 of 10 said increasing their energy levels
  • 4 of 10 said preventing their ITP from becoming worse
What doctors said their goals are…
  • 7 of 10 said reducing spontaneous bleeds
  • 6 of 10 said a better quality of life
  • 6 of 10 said symptom improvement
Preferences about how treatment is taken
What people with ITP said…
  • 9 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 8 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 86
  • Reduce bleeding: 86
A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

United States: I-WISh Survey Results

Learn what people from the United States and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.
Symptoms
People with ITP are commonly impacted by physical symptoms such as fatigue and bruising, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.
The most common symptoms people were experiencing at the
time of the survey
What people with ITP said…
  • 6 of 10 experience fatigue
  • 4 of 10 experience anxiety about their platelet count being unstable
  • 4 of 10 experience bruising for no known reason
What doctors said…
  • 9 of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
  • 8 of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
  • 8 of 10 said their patients experience nosebleeds
The symptoms people with ITP most want to go away
  • 6 of 10 said fatigue
  • 3 of 10 said anxiety about their platelet count being unstable
  • 2 of 10 said bruising for no known reason
Effects on
daily life
ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise, work, or study. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.
The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)
  • 5 of 10 said their energy levels
  • 3 of 10 said their ability to exercise
  • 3 of 10 said their work life or their studies
The emotional impact of ITP: What people said they worry about most
  • #1: I worry that my condition will get worse
  • #2: I worry that my platelet count fluctuates for no apparent reason
  • #3: I feel frustrated by having to put up with symptoms
Treatment
People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.
The most common treatment goals
What people with ITP said their goals are…
  • 8 of 10 said healthy blood counts
  • 5 of 10 said increasing their energy levels
  • 5 of 10 said preventing their ITP from becoming worse
What doctors said their goals are…
  • 8 of 10 said healthy blood counts
  • 7 of 10 said reducing spontaneous bleeds
  • 5 of 10 said a better quality of life
Preferences about how treatment is taken
What people with ITP said…
  • 9 of 10 said they prefer an oral once-daily pill
What doctors said…
  • 9 of 10 said they prefer an oral once-daily pill
How important is it to…?
People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):
  • Keep side effects to a minimum: 85
  • Reduce bleeding: 88