Global survey of people with immune thrombocytopenia (ITP): I-WISh

A map of the countries that participated in a survey about ITP symptoms,
how ITP affects people’s daily lives, and treatment

Global: I-WISh Results

Learn what people around the world and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue and petechiae, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience anxiety about their platelet count being unstable
of 10 experience petechiae (tiny red/purple dots on the skin)

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
of 10 said their patients experience nosebleeds and gum bleeding

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said anxiety about their platelet count being unstable
of 10 said bruising for no known reason

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their ability to exercise
of 10 said their work life or their studies

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry that my condition will get worse
#3: I worry about my disease

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said preventing their ITP from becoming worse
of 10 said increasing their energy levels

What doctors said their goals are…

of 10 said reducing spontaneous bleeds
of 10 said a better quality of life
of 10 said healthy blood counts

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer oral once-daily pill

What doctors said…

of 10 said they prefer oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 86
Reduce bleeding: 87

Satisfaction with treatment

People taking TPO-RAs were twice as likely to recommend this treatment to another person with ITP, compared with people taking a monoclonal antibody or corticosteroids*
Approximately 15% to 20% more people experience fatigue as a side effect of treatment† with corticosteroids or a monoclonal antibody, compared to treatment with TPO-RAs

The most common effects of splenectomy

What people who received a splenectomy said…

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

of 10 required regular immunizations
of 10 experienced more infections
of 10 experienced none of these consequences

*These results are based on the number of patients who said they strongly agree with the statement that they would recommend the treatment to another person with ITP.

^†Among patients reporting a high or very high symptom burden.

Canada: I-WISh Survey Results

Learn what people from Canada and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue and petechiae, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience anxiety about their platelet count being unstable
of 10 experience petechiae (tiny red/purple dots on the skin)

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience nosebleeds
of 10 said their patients experience gum bleeding

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said anxiety about their platelet count being unstable
of 10 said bruising for no known reason

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their ability to exercise
of 10 said their work life or their studies

The emotional impact of ITP: What people said they worry about most

#1: I worry that my condition will get worse
#2: I worry that my platelet count fluctuates for no apparent reason
#3: I worry about my disease

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said increasing their energy levels
of 10 said preventing their ITP from becoming worse

What doctors said their goals are…

of 10 said reducing spontaneous bleeds
of 10 said a better quality of life
of 10 said healthy blood counts

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 90
Reduce bleeding: 89

China: I-WISh Survey Results

Learn what people from China and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue and bruising, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience bruising for no known reason
of 10 experience anxiety about their platelet count being unstable

What doctors said…

of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience gum bleeding

The symptoms people with ITP most want to go away

of 10 said bruising for no known reason
of 10 said fatigue
of 10 said anxiety about their platelet count being unstable
of 10 said petechiae (tiny red/purple dots on the skin)

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their ability to exercise
of 10 said their work life or their studies

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry about my disease
#3: I worry about dying

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preference for a treatment with minimal side effects.

The most common treatment goals

What people with ITP said their goals are…

of 10 said reducing my spontaneous bruising/bleeding
of 10 said healthy blood counts
of 10 said improving my quality of life

What doctors said their goals are…

of 10 said reducing spontaneous bleeds
of 10 said a better quality of life
of 10 said healthy blood counts

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 87
Reduce bleeding: 88

Colombia: I-WISh Survey Results

Learn what people from Colombia and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as bruising and petechiae, but their doctors may not be aware of their fatigue or the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience bruising for no known reason
of 10 experience petechiae (tiny red/purple dots on the skin)

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience nosebleeds
of 10 said their patients experience gum bleeding

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said anxiety about their platelet count being unstable
of 10 said petechiae (tiny red/purple dots on the skin)

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their work life or their studies
of 10 said their ability to exercise

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry about dying
#3: I worry that my condition will get worse

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preference for a treatment with minimal side effects.

The most common treatment goals

What people with ITP said their goals are…

of 10 said improving my quality of life
of 10 said healthy blood counts
of 10 said reducing my spontaneous bruising/bleeding

What doctors said their goals are…

of 10 said healthy blood counts
of 10 said a better quality of life
of 10 said reducing spontaneous bleeds

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 90
Reduce bleeding: 90

Egypt: I-WISh Survey Results

Learn what people from Egypt and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue and dizziness, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience anxiety about their platelet count being unstable
of 10 experience dizziness

What doctors said…

of 10 said their patients experience gum bleeding
of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
of 10 said their patients experience fatigue

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said heavy bleeding from the gums
of 10 said dizziness

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to socialize or take on daily tasks. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their social life
of 10 said their ability to support people
of 10 said their ability to take on daily tasks

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry about having a stable and safe platelet count
#3: I am stressed about my ITP condition
#4: I often feel anxious/nervous about my platelet counts

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.

The most common treatment goals

What people with ITP said their goals are…

of 10 said increasing their energy levels
of 10 said reducing spontaneous bleeds/bruising
of 10 said improving their quality of life

What doctors said their goals are…

of 10 said reducing spontaneous bleeds
of 10 said a better quality of life
of 10 said slowing or delaying the progression of ITP

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 73
Reduce bleeding: 92

France: I-WISh Survey Results

Learn what people from France and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience no symptoms
of 10 experience anxiety about their platelet count being unstable

What doctors said…

of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience gum bleeding

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said anxiety about their platelet count being unstable
of 10 said heavy menstrual bleeding

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or work. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their work life or their studies
of 10 said their ability to exercise

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry that my condition will get worse
#3: I worry about my disease
#4: I worry about dying

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preference for a treatment with minimal side effects.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said preventing their ITP from becoming worse
of 10 said improving their quality of life

What doctors said their goals are…

of 10 said reducing spontaneous bleeds
of 10 said a better quality of life
of 10 said symptom improvement

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 90
Reduce bleeding: 91

Germany: I-WISh Survey Results

Learn what people from Germany and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as hematomas and fatigue, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience hematomas
of 10 experience fatigue
of 10 experience bruising for no known reason

What doctors said…

of 10 said their patients experience nosebleeds
of 10 said their patients experience hematomas
of 10 said their patients experience prolonged bleeding from cuts

The symptoms people with ITP most want to go away

of 10 said fatigue or hematomas
of 10 said anxiety about their platelet count being unstable
of 10 said prolonged bleeding from cuts

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or have sex. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their ability to exercise
of 10 said their energy levels
of 10 said their sex life

The emotional impact of ITP: What people said they worry about most

#1: I worry that my condition will get worse
#2: I worry that my platelet count fluctuates for no apparent reason
#3: I worry about my disease

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said improving their quality of life
of 10 said increasing their energy levels

What doctors said their goals are…

of 10 said better quality of life
of 10 said reducing spontaneous bleeds
of 10 said healthy blood counts

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 76
Reduce bleeding: 77

India: I-WISh Survey Results

Learn what people from India and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue and bleeding, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience heavy menstrual bleeding
of 10 experience anxiety about their platelet count being unstable

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
of 10 said their patients experience gum bleeding

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said heavy menstrual bleeding
of 10 said anxiety about their platelet count being unstable

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to work or study. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their work life or their studies
of 10 said their time off work or their education
of 10 said their energy levels

The emotional impact of ITP: What people said they worry about most

#1: I often feel anxious/nervous about my platelet counts
#1: I worry about having a stable and safe platelet count
#2: I worry that my platelet count fluctuates for no apparent reason

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that prevents their ITP from becoming worse.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said improving their quality of life
of 10 said preventing their ITP from becoming worse

What doctors said their goals are…

of 10 said reducing spontaneous bleeds
of 10 said a better quality of life
of 10 said symptom improvement

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 83
Reduce bleeding: 76

Italy: I-WISh Survey Results

Learn what people from Italy and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue and bruising, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience anxiety about their platelet count being unstable
of 10 experience bruising for no known reason

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience hematomas
of 10 said their patients experience nosebleeds

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said anxiety about their platelet count being unstable
of 10 said bruising for no known reason

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or pursue hobbies. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their ability to exercise
of 10 said their energy levels
of 10 said their hobbies

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry that my condition will get worse
#3: I feel helpless because of my ITP

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that prevents their ITP from becoming worse.

The most common treatment goals

What people with ITP said their goals are…

of 10 said reducing spontaneous bleeds/bruising
of 10 said healthy blood counts
of 10 said preventing their ITP from becoming worse

What doctors said their goals are…

of 10 said better quality of life
of 10 said reducing spontaneous bleeds
of 10 said symptom improvement

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 88
Reduce bleeding: 88

Japan: I-WISh Survey Results

Learn what people from Japan and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as petechiae, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience anxiety about their platelet count being unstable
of 10 experience no symptoms
of 10 experience petechiae (tiny red/purple dots on the skin)

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
of 10 said their patients experience nosebleeds

The symptoms people with ITP most want to go away

of 10 said anxiety about their platelet count being unstable
of 10 said petechiae (tiny red/purple dots on the skin)
of 10 said bruising for no known reason

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to socialize, work, or study. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their ability to support people
of 10 said their work life or their studies
of 10 said their energy levels or their social life

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry that my condition will get worse
#3: I worry about having a stable and safe platelet count
#3: I often feel anxious/nervous about my platelet counts

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that prevents their ITP from becoming worse.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said preventing their ITP from becoming worse
of 10 said reducing my spontaneous bleeds/bruising

What doctors said their goals are…

of 10 said a better quality of life
of 10 said reducing spontaneous bleeds
of 10 said healthy blood counts

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 80
Reduce bleeding: 88

Spain: I-WISh Survey Results

Learn what people from Spain and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue and petechiae, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience anxiety about their platelet count being unstable
of 10 experience fatigue
of 10 experience petechiae (tiny red/purple dots on the skin)

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience hematomas
of 10 said their patients experience gum bleeding

The symptoms people with ITP most want to go away

of 10 said anxiety about their platelet count being unstable
of 10 said fatigue
of 10 said bruising for no known reason or petechiae (tiny red/purple dots on the skin)

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their social or sex lives. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their social life
of 10 said their sex life

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry that my condition will get worse
#3: I feel helpless because of my ITP

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that prevents their ITP from becoming worse.

The most common treatment goals

What people with ITP said their goals are…

of 10 said reducing spontaneous bleeds/bruising
of 10 said preventing their ITP from becoming worse
of 10 said improving their quality of life

What doctors said their goals are…

of 10 said a better quality of life
of 10 said reducing spontaneous bleeds
of 10 said symptom improvement

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 77
Reduce bleeding: 81

Turkey: I-WISh Survey Results

Learn what people from Turkey and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as petechiae and fatigue, but their doctors may not be aware of how fatigue and headaches also affect their lives.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience petechiae (tiny red/purple dots on the skin)
of 10 experience fatigue
of 10 experience more moderate-to-severe headaches or migraines

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience fatigue
of 10 said their patients experience gum bleeding

The symptoms people with ITP most want to go away

of 10 said petechiae (tiny red/purple dots on the skin)
of 10 said fatigue
of 10 said moderate-to-severe headaches or migraines

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their sex life to their ability to exercise or pursue hobbies. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their sex life
of 10 said their ability to exercise
of 10 said their hobbies

The emotional impact of ITP: What people said they worry about most

#1: I worry that my platelet count fluctuates for no apparent reason
#2: I worry about my disease
#3: I worry that my condition will get worse
#3: I am stressed about my ITP condition
#3: I worry about dying

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but doctors may not be aware of their patients’ preference for a treatment with minimal side effects that improves their quality of life.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said improving their quality of life
of 10 said reducing spontaneous bleeds/bruising

What doctors said their goals are…

of 10 said reducing spontaneous bleeds
of 10 said healthy blood counts
of 10 said slowing or delaying the progression of ITP

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 99
Reduce bleeding: 99

United Kingdom: I-WISh Survey Results

Learn what people from the United Kingdom and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as bruising and petechiae, but their doctors may not be aware of how fatigue and depression also affect their lives.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience bruising for no known reason
of 10 experience petechiae (tiny red/purple dots on the skin)

What doctors said…

of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
of 10 said their patients experience nosebleeds
of 10 said their patients experience petechiae (tiny red/purple dots on the skin)

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said bruising for no known reason
of 10 said depression

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise or take on daily tasks. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their ability to exercise
of 10 said their ability to take on daily tasks

The emotional impact of ITP: What people said they worry about most

#1: I worry that my condition will get worse
#2: I worry that my platelet count fluctuates for no apparent reason
#3: I worry about my disease

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said increasing their energy levels
of 10 said preventing their ITP from becoming worse

What doctors said their goals are…

of 10 said reducing spontaneous bleeds
of 10 said a better quality of life
of 10 said symptom improvement

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 86
Reduce bleeding: 86

United States: I-WISh Survey Results

Learn what people from the United States and the doctors who treat them have to say about their symptoms, the effects of ITP on their daily lives, and treatment.

Symptoms

People with ITP are commonly impacted by physical symptoms such as fatigue and bruising, but their doctors may not be aware of the anxiety they feel about having to track platelet levels.

The most common symptoms people were experiencing at the
time of the survey

What people with ITP said…

of 10 experience fatigue
of 10 experience anxiety about their platelet count being unstable
of 10 experience bruising for no known reason

What doctors said…

of 10 said their patients experience petechiae (tiny red/purple dots on the skin)
of 10 said their patients experience purpura (bruising caused by bleeding from small blood vessels under the skin)
of 10 said their patients experience nosebleeds

The symptoms people with ITP most want to go away

of 10 said fatigue
of 10 said anxiety about their platelet count being unstable
of 10 said bruising for no known reason

Effects on
daily life

ITP affects many aspects of people’s daily lives—from their energy levels to their ability to exercise, work, or study. As people with ITP look toward the future, many worry about unexplained and unpredictable changes in their condition.

The parts of people’s lives that are affected by ITP most often (more than half of the time or all the time)

of 10 said their energy levels
of 10 said their ability to exercise
of 10 said their work life or their studies

The emotional impact of ITP: What people said they worry about most

#1: I worry that my condition will get worse
#2: I worry that my platelet count fluctuates for no apparent reason
#3: I feel frustrated by having to put up with symptoms

Treatment

People with ITP and their doctors are often aligned when it comes to the goals of treatment, but there may be more to discuss about how treatment affects daily life. Doctors stress the importance of giving patients a better quality of life, but they may not be aware of their patients’ specific preferences for a treatment with minimal side effects that increases their energy levels.

The most common treatment goals

What people with ITP said their goals are…

of 10 said healthy blood counts
of 10 said increasing their energy levels
of 10 said preventing their ITP from becoming worse

What doctors said their goals are…

of 10 said healthy blood counts
of 10 said reducing spontaneous bleeds
of 10 said a better quality of life

Preferences about how treatment is taken

What people with ITP said…

of 10 said they prefer an oral once-daily pill

What doctors said…

of 10 said they prefer an oral once-daily pill

How important is it to…?

People with ITP rated the following on a scale of 1-100 (1=not important at all and 100=the most important):

Keep side effects to a minimum: 85
Reduce bleeding: 88

What is the
I-WISh
Survey?

See how ITP
affects people
throughout
the world

Global: I-WISh Results

Canada: I-WISh Survey Results

China: I-WISh Survey Results

Colombia: I-WISh Survey Results

Egypt: I-WISh Survey Results

France: I-WISh Survey Results

Germany: I-WISh Survey Results

India: I-WISh Survey Results

Italy: I-WISh Survey Results

Japan: I-WISh Survey Results

Spain: I-WISh Survey Results

Turkey: I-WISh Survey Results

United Kingdom: I-WISh Survey Results

United States: I-WISh Survey Results

What is the I-WISh Survey?

See how ITP affects people throughout the world

Global: I-WISh Results

Canada: I-WISh Survey Results

China: I-WISh Survey Results

Colombia: I-WISh Survey Results

Egypt: I-WISh Survey Results

France: I-WISh Survey Results

Germany: I-WISh Survey Results

India: I-WISh Survey Results

Italy: I-WISh Survey Results

Japan: I-WISh Survey Results

Spain: I-WISh Survey Results

Turkey: I-WISh Survey Results

United Kingdom: I-WISh Survey Results

United States: I-WISh Survey Results

What is the
I-WISh
Survey?

See how ITP
affects people
throughout
the world